2024 Gathering

July 16-18, 2024
In-Person: $249.00 | Virtual: $175.00

Progress Through Partnerships

Norfolk, VA

Sponsored by

Schedule of Events

Below is the working agenda for the 2024 Gathering. Please note that the times included in this agenda are subject to change while it is still a working agenda.

Scroll down to learn about our Keynote Speakers!

Tuesday, July 16, 2024

8:00-10:00am EST/7:00 CT/6:00 MT/5:00 PDT
Check-In/Registration/Networking

10:00-11:00am EST/9:00 CT/8:00 MT/7:00 PDT
Welcome – TLCPCP Board of Directors

11:15am-12:45pm EST/10:15 CT/9:15 MT/8:15 PDT
Keynote Speaker: Rodrigo Souza
Discover the Power of Self-Compassion through Yoga!
Learn how to approach Trauma, Loss, and Disability with a more accepting and loving mindset. Let’s explore how practising Yoga can help you develop a more compassionate relationship with yourself and overcome life’s challenges.

1:00-2:00pm EST/12:00 CT/11:00 MT/10:00 PDT
Lunch

2:15-3:15pm EST/1:15 CT/12:15 MT/11:15 PDT
Four Concurrent Sessions

1. Connecting and Succeeding in Small Communities
My son, Isaac and I propose to tell of his transition from living in a large town to going back to his hometown. He lives on our place in an apartment, helps us with various chores, has a part time job at a local restaurant, and is an active member of our church. He has his family close by and is very content with his life. While he was in a city and had supported employment, lived in an apartment with a room only, he was not satisfied and often showed this through behaviors. He has been a presenter for People Planning Together in SD, but the program was discontinued.
Isaac and I would like to share his experiences. Carolee Little & Isaac Little

2. Digging Deeper: Asking Questions and Thinking Critically
Often, the greatest barrier to person-centeredness is the inability of service providers to ask questions and think critically about the situations those who receive services, and their families, are facing. Service systems have created an environment that is focused on billing and paperwork and misses the most important aspect of the system: the person. Together we can refocus the system’s attention on the person by learning how to ask effective questions and thinking critically to help bring about person-centered, positive outcomes for those we support. Mark Morris

3. Culturally Responsiveness in Person-Centered Practices
Participants will use person-centered thinking skills and tools to learn about implicit bias, microaggressions and culturally relevant practices. These tools and related activities will help participants to develop and enhance their facilitation skills that are culturally relevant to students, families, and communities. Valentina Arango-Correa

4. Trainer Meeting

3:30-4:30pm EST/2:30 CT/1:30 MT/12:30 PDT
Four Concurrent Sessions

1. Stop Talking About Me and Listen To Me! 
Since 2017, Ty and Aimee Day have used person-centered planning and trauma-informed support help Ty become a young adult who is not afraid to speak up for himself. Ty will share his story of feeling powerless and misunderstood, even by his own mother! Mom learned how to truly listen and discover what he was trying to tell her. Together, they taught others the importance of having the POWER to make informed choices and have positive control to help him reach his goals. Aimee Day & Ty Day

2. Time for Change: Addressing Trauma from the Person to Organization
This will be a first look at a comprehensive Trauma-Informed Care (TIC) framework being developed as part of a doctoral culminating project to decrease barriers to care. Although it has been recognized as a best practice, people with Intellectual and Developmental Disabilities (I/DD) are often not included in the research and implementation of TIC. This session will guide participants through the design of this groundbreaking approach aimed at enhancing the support for people with I/DD who have experienced trauma, fostering a truly transformative and forward thinking approach to care. Michelle Stroebel

3. Measuring a Person Centered Culture
Michael Smull challenged us in the early days of PCT to help “create better lives, not better paper”. Since “better living” is notoriously hard to measure, this session will introduce a scale of 10 person-centered elements used to observe/assess staff performance, in vivo, regarding “person-centeredness” in any service setting. The 10 elements…Interaction Tone, Coaching, Engagement, Enthusiasm, and Accessibility, to name a few, are discussed in the session, along with observable identifiers that define ratings on a scale of 1 – 5. When implemented, this tool can provide staff with teachable moments and immediate feedback, with the aim of making the staff member’s interactions more person-centered at that moment in time. This scale was not intended for formal statistical purposes, but it can be used to evaluate and measure performance of the organization’s person-centered practices over time. Menorca Collazzo, Charles Seider & Mickie Muroff

4. Chair Yoga Virtually with Rodrigo Souza

4:30-5:00pm EST/3:30 CT/2:30 MT/1:30 PDT
Closing Session/Wrap Up the Day

7:00-9:30pm EST/6:00 CT/5:00 MT/4:00 PDT
Film Viewing with Cash Bar at 7:00pm, Film Runs 8:00-9:30pm with cash bar open throughout!

Join us for an opportunity for networking, a cash bar, and a viewing of Wine, Women, and Dementia, the documentary directed by one of our very own keynote speakers, Kitty Norton.

This documentary shares the story of Kitty’s journey as caregiver to her mother when her mother began living with dementia. Wine, Women, and Dementia reflects the laughter, tears, struggles, and successes of supporting a person living with dementia while raising awareness of the dynamics of caregiving.

Additional After the Gathering Activites:

Click Here to download a helpful PDF of several after hours activities in Norfolk and Virginia Beach, VA.

Wednesday, July 17, 2024

8:00-9:45am EST/7:00 CT/6:00 MT/5:00 PDT
Networking & Board of Directors Meet-Up

10:00-11:00am EST/9:00 CT/8:00 MT/7:00 PDT
Four Concurrent Sessions

1. Using Person Centered Approach Towards Better Health Outcomes for Adults with IDD
It is estimated that people with IDD experience premature death and live an average of 20 fewer years than those without disabilities. This startling statistic is compounded by the estimation that nearly 40% of the deaths are caused from preventable illnesses, such as dehydration, constipation or aspiration. This presentation will focus on targeting person centered approaches to help people with IDD become better advocates for their own healthcare and become more informed about making decisions regarding healthcare. Participants will receive a workbook that is designed to foster conversations regarding health priorities, making decisions about how to communicate with healthcare professionals, and how supporters should be involved in medical visits. Participants will also receive a template to use the information from the workbook to develop a one-page health profile that may be shared with medical professionals. This session features a presenter will lived experience and a co-trainer who is certified in teaching Person Centered Thinking. Molly Dellinger-Wray & Taylor Thomas-Harris

2. Self-Advocacy: Using everyday person-centered skills to empower people living in Long-Term Care
Minnesota continues to move toward person-centered practices in all areas of service delivery. The Office of Ombudsman for Long-Term Care, a program under the Minnesota Board on Aging promotes person-centered living that respects people’s values and choices. The Minnesota Office of Ombudsman for Long-Term Care has partnered with Moving Home Minnesota (a Money Follows the Person project) to develop a training curriculum for people who receive long-term services and support in both the Skilled Nursing Setting and Licensed Assisted Living Setting. These self-advocacy training’s focuses on; Resident and Family Council Development and include topics such as: the history of self-advocacy, resident rights, one-page descriptions, person centered care planning, how to be your own best self-advocate, voicing grievances and understanding retaliation. Emma Shepard & Tammy Hollingsworth

3. What’s Data Got To Do With It: A Data-Based Approach to Person-Centeredness
As the work towards HCBS compliance continues across the entire country, person-centeredness continues to be the focal point. As certified trainers and person-centered planning workshop facilitators, we know the benefits of effective person-centered practices; however, without “data”, it becomes difficult to prove the efficacy and effectiveness of such practices to legislation as a means of sustainable funding. In this interactive workshop, we will explore how to collect, synthesize, and use data to drive decisions made at the individual, organizational and systemic levels. Participants can expect to walk away with the working knowledge to showcase data that make a difference. Fruc Menchavez & Alva Gardner-Bolsieri

4. Spanish Trainers Workgroup

11:15am-12:45pm EST/10:15 CT/9:15 MT/8:15 PDT
Keynote Speaker: Fletcher Cleaves
The Importance of Never Giving Up

1:00-2:00pm EST/12:00 CT/11:00 MT/10:00 PDT
Lunch

2:15-3:15pm EST/1:15 CT/12:15 MT/11:15 PDT
Annual Meeting

3:30-4:30pm EST/2:30 CT/1:30 MT/12:30 PDT
Four Concurrent Sessions

1. Love and Friendship in the 21st Century
Perhaps one of the greatest challenges we face when supporting people with intellectual and developmental disabilities is the epidemic of loneliness. This is an issue tha tmust be focused on and there are solutions. One possible solution is the dating app called Hello its me, another is training the DSPs to be social coaches. Yet another is to create singles groups for friendship and dating. Stories and strategies will be shared. Karyn Harvey, Kevin Drumheller & Vik Aurora

2. Learning Marketplace: Time for Change: Addressing Trauma from the Person to Orgnization
This will be a first look at a comprehensive Trauma-Informed Care (TIC) framework being developed as part of a doctoral culminating project to decrease barriers to care. Although it has been recognized as a best practice, people with Intellectual and Developmental Disabilities (I/DD) are often not included in the research and implementation of TIC. This session will guide participants through the design of this groundbreaking approach aimed at enhancing the support for people with I/DD who have experienced trauma, fostering a truly transformative and forward thinking approach to care. Michelle Stroebel

3. Learning Marketplace: Measuring a Person Centered Culture In Vivo
Michael Smull challenged us in the early days of PCT to help “create better lives, not better paper”. Since “better living” is notoriously hard to measure, this session will introduce a scale of 10 person-centered elements used to observe/assess staff performance, in vivo, regarding “person-centeredness” in any service setting. The 10 elements…Interaction Tone, Coaching, Engagement, Enthusiasm, and Accessibility, to name a few, are discussed in the session, along with observable identifiers that define ratings on a scale of 1 – 5. When implemented, this tool can provide staff with teachable moments and immediate feedback, with the aim of making the staff member’s interactions more person-centered at that moment in time. This scale was not intended for formal statistical purposes, but it can be used to evaluate and measure performance of the organization’s person-centered practices over time. Menorca Collazo

4. Mentor Meeting

4:30-5:00pm EST/3:30 CT/2:30 MT/1:30 PDT
Closing Session/Wrap Up the Day

6:30-10:30pm EST
Banquet Dinner & Auction

Click Here to learn more about this year’s auction!

Thursday, July 18, 2024

8:00-9:45am EST/7:00 CT/6:00 MT/5:00 PDT
Networking Time

10:00-11:00am EST/9:00 CT/8:00 MT/7:00 PDT
Four Learning Marketplace

11:15am-12:45pm EST/10:15 CT/9:15 MT/8:15 PDT
Keynote Speaker: Kitty Norton
Flop. Fail. Flourish: A dementia family caregiver’s journey to Person Centered Care
Tossed into the fray of dementia family caregiving with no inkling of the challenges that awaited, Kitty Norton found her way to person centered care for her mother, Gloria, through trial and error, error, error…

Join us for an opportunity for networking, a cash bar, and a viewing of Wine, Women, and Dementia, the documentary directed by Kitty Norton on Tuesday, July 16 at 7:00pm.

1:00-2:00pm EST/12:00 CT/11:00 MT/10:00 PDT
Lunch

2:15-3:15pm EST/1:15 CT/12:15 MT/11:15 PDT
Four Concurrent Sessions

1. Risk and Supported Decision-Making
An interactive discussion introducing the concept of risk and how supported decision-making and person-centered skills can be utilized to assist someone with making informed decisions for any activities that involve risk. Additionally, learn about the concept of dignity of failure, in addition to dignity of risk using best practices. The audience will have an opportunity to think more critically about their own perceptions of risk through activities. Sara Thompson & Dr. Jan Nelson

2. Empowering Choice through Dignity of Risk: How to Navigate Safety in a Self-Determined Life
To inform individuals with ID/DD, their families, providers, legal representatives, and others that a self-determined life is a fundamental human right and dignity in taking safe risks should be respected, even for those with disabilities. This presentation discusses three major life risks (finances, health & safety, and citizenship) that cause the most concern from a person and those who care about them. Our presentation explains legal rights and protections, the perspective of adult advocates with disabilities, and guidance for providers and other support team members on how to create a respectful and encouraging environment for individuals with ID/DD to express self-determination through informed choices and dignity of risk. Victoria Arvizu & Jesse Monroe

3. Burnout vs Compassion Fatigue: Person Centered Approaches to Supporting Staff
Burnout is a state of exhaustion that causes poor motivation and a lack of interest in work. It is caused by work-related attributes such as the job, coworkers, one’s supervisor and poor work culture. Compassion fatigue is a specific type of burnout that refers to the negative emotions and loss of empathy people experience after being exposed to other people’s trauma, pain, and suffering. It is caused by the exposure to traumatic events (even in a vicarious way). This training focuses on providing accurate information about trauma and how It impacts people, especially the workforce. This assists teams to work together, using person centered skills to collect, synthesize, and organize information for trauma-informed person centered planning and support of the workforce. This series builds on the skills learned in PCT Training and provides a practical applications for immediate use. Tanya Richmond

4. People Planning Together

3:30-4:30pm EST/2:30 CT/1:30 MT/12:30 PDT
Four Concurrent Sessions

1. Self-Advocacy is for Everyone!
Since 2015, Core Services of Northeast Tennessee has been on a journey to live the ideals of the HCBS Setting Rules with rewarding results. Lives began to improve as we listened and acted in more thoughtful and deliberate ways. This created an “ah-ha” moment for agency leaders. What if the same person-centered practices that are producing such amazing results with people supported were applied to agency employees? This turned out to be the answer to the DSP staffing shortage as well as being vital to the reduction in vacancies and turnover. DSP vacancy rates fell and stayed at 4%.

One definition of self-advocacy is “the action of representing oneself or one’s views or interests”. Listen to agency leaders as they talk about how agency transformation created a unique opportunity to make sure everyone in the agency has the support to represent themselves and their views or interests. This included career advancement opportunities for DSPs, the formation of councils to provide input into the agency mission and self-advocacy opportunities at all levels of the organization. Attendees will receive practical ideas and practices that can be replicated. Susan Arwood & Nick Filarelli

2. Creating an Equitable Learning Environment Using PCT
In this engaging session, you will discover the power of Person-Centered Thinking (PCT) in building empathetic relationships with families. By implementing PCT strategies, you will create a warm and welcoming environment that empowers families, ultimately leading to improved student outcomes. Join us to unlock the potential of PCT and transform your approach to family and community engagement. Angela Menchaca

3. How to Succeed
Self advocay. Self determinat. Finding your village. This is my story and where it has led me to where I am today. Shelbi Davenport 

4. Let’s talk about Death – The importance of end-of-life discussions and planning
Ensuring a positive death is like advocating for quality of life. Everyone has the right to decide how they want their end-of-life to look. Come discover the Death Positive Movement; the importance of talking about death with family and friends; and important planning tools. We will explore advanced care directives; comfort care plans; celebration-of-life events; home funerals; and alternative burial options. Learn how to embrace end-of-life planning for yourself and how to share it with those you support, care for and love. Rebecca Jones

4:30-5:00pm EST/3:30 CT/2:30 MT/1:30 PDT
Closing Session/Wrap Up the Event

Keynote Speakers

Rodrigo Souza

Meet Rodrigo Souza (he/him), an Adaptive & Accessible Yoga teacher passionate about helping people who have undergone Trauma & Disability.

Rodrigo himself has faced significant challenges, having suffered a severe spinal cord injury due to a fall accident, which left him completely paralysed from the chest down.

However, he didn’t let his condition define him, and instead, he decided to take charge of his recovery and optimise his long-term well-being.

Through his Allihopa Accessible & Adaptive Virtual Yoga Studio, Rodrigo has created a safe and welcoming space for people worldwide with diverse abilities to practice yoga and find healing. He also teaches for several Non-profits, community centres and newly injured folks in an Active Rehabilitation Center in Sweden.

Moreover, he holds a position on the board of directors for the Accessible Yoga Association, where he focuses on creating a supportive community for those who have experienced trauma, loss & and disability through Adaptive & Accessible Yoga. To learn more about Rodrigo, check out his website at www.allihopayoga.com or follow him on social media at @allihopayoga.

July 16, 2024 from 11:15am-12:45pm EST/10:15-11:45 CST/9:15-10:45 MT/8:15-9:45 PT

Fletcher Cleaves

Fletcher Cleaves was involved in a tragic car crash that left him paralyzed from the chest down due to a driver suspected of texting while behind the wheel. This traumatic incident caused him to lose his football scholarship but with faith, perseverance, and a year of intense physical therapy, he re-enrolled in school and graduated from The University of Memphis with a degree in Computer Science. Now as a professional motivational speaker, Fletcher has shared his testimony of overcoming adversity, safe driving, importance of education, and faith base living with ESPN, TEDx, College Game-Day, and to over 500 high schools, colleges, and business.  Fletcher is also a world traveler obtaining the nickname “The Wheelchair Nomad”. He travels to many countries living life to the fullest while also bringing awareness to accessibility issues in the travel industry. 

To many, his accident seemed like the end of a young man’s promising future, but on the contrary, it became the prologue to his destiny.

July 17, 2024 from 11:15am-12:45pm EST/10:15-11:45 CST/9:15-10:45 MT/8:15-9:45 PT

Kitty Norton

In 2016, Kitty Norton left her job as an NBC assistant editor in Los Angeles, CA for her hometown of Portland, OR to walk, stumble, crawl with her dementia mother to death’s door. While doing so, she authored the dementia caregiver blog Stumped Town Dementia (under the pseudonym Lickety Glitz), writing tales of dementia life, not dementia death, which resonated deeply with readers around the world.

Kitty directed, filmed, and edited numerous short videos to commemorate dementia life with her mother, Gloria, for the blog. When Gloria died in 2021, Kitty was compelled to make “Wine, Women, and Dementia,” her first feature film – to honor this journey with her mother, to spread awareness of the caregiver side of the equation in dementia, and to let other dementia households know they are not alone, that they are worthy of being seen and celebrated as they slog alongside their dementia person to the end of life.

Kitty set out to make a documentary that illustrates what she and so many other dementia family caregivers have discovered: Until there’s a cure, there’s community. “Wine, Women, and Dementia” has succeeded.

July 18, 2024 from 11:15am-12:45pm EST/10:15-11:45 CST/9:15-10:45 MT/8:15-9:45 PT